3-year-old baby has red skin

Jack Oldacres, 3, has Netherton syndrome since birth. Symptoms of this disease are chronic dermatitis, severe dehydration and developmental delay.

Netherton syndrome affects 1 / 800,000 people and only 16 cases in the UK. These people have red, itchy, flaky skin and must bathe twice a day in a disinfection bath to avoid infection. This syndrome also causes severe dehydration and developmental delay.

Baby Jack by parents

Danny, Jack's father shared: "People think we let Jack so long in the sun or make him burn when bathing. There was a time a woman shouted to me:" Why did you leave the boy? in the sun for so long? "I told her that Jack was sick and she just said" oh "and left without an apology."

Tired of being ridiculed, her parents launched a public education initiative. " We decided that we should try to educate people about this disease rather than being angry or frustrated by what they said," said Jack's parents.

Jack was born with Netherton syndrome, a rare skin syndrome

Baby Jack was born 5 weeks premature by caesarean section, had to live in the hospital for 6 months to avoid infection and avoid disease penetrating through the boy's delicate skin. Less than 1 year old Jack has a blood infection and bronchitis.

With the care of the family, Jack is now 3 years old and going to kindergarten. Jack's parents went to school and talked to people about why Jack looked like that. Soon after, there were many kids who wanted to be friends with Jack. The boy is special to other children so the kids want to know more about Jack.

Now Jack is 3 years old and is going to kindergarten

There is currently no cure for this life-threatening disease, but there are a few things to help reduce symptoms such as keeping warm, using anti-infection treatments and steroid use.