A baby with a strange disease should not cry

Baby Daisy Ogston (2 years old, UK) was born with a rare disease Adams-Oliver Syndrome with a skull almost one more time and he could die anytime if he cried.

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Adams-Oliver Syndrome's congenital disorder affects the scalp and skull very rarely. Baby Daisy Ogston is one of only 130 people worldwide suffering from this disease.

Little Daisy now only knows how to play alone.

The baby's skull, Daisy, lacks a symmetrical Y-shaped space through the nasal passage with a radius of 6cm, so the only material to protect the baby's brain is brain fluid and a thin skin.

Daisy was born at birth and her baby X-ray image at birth

The parents of Daisy, Mark Jenner (34) and Kerry Ogston (32), were warned by doctors that at any cost, they should not let babies cry because this will increase the pressure. The brain causes the brain fluid to enter the skull causing an infection that can lead to life-threatening.

That means there is no safe place in the house for Daisy to play, everything from hooks to objects in the house can hurt her.

Baby Daisy and mother

Once in 2010 when she was born, when Daisy burst into tears, the situation became very bad and she was immediately transferred to Great Ormond Street Hospital in London to be taken care of by doctors. special for 3 months.

Kerry said that although she had a rare disease, Daisy was enjoying a "normal" life. "We always have to watch Daisy's mood and try to comfort her before she cries , " she said.

According to the doctors, if they want to have a normal life like other people, little Daisy needs to undergo several complicated brain surgeries but must wait until she is 13 years old to have enough health conditions.

It took 11 years for Daisy to have surgery.

"I just hope that the doctors have a chance to do it once before Daisy's turn , " Kerry, a little heaving, fears for her child's fate.

The baby now always has a helmet to protect the head from outside collisions, but she cannot wear it for too long because it will cause sweating and the delicate skin on the top of the head can be peeled off.

Poor Daisy now only knows how to play alone, not play with other small children because you may accidentally hurt her resulting unforeseen consequences.

But in the risk, there is also a chance, Daisy is always cheerful and lively, many people are interested, so it is rare when she feels sad.

Reference: Daily Mail