Rhys Williams, 6, in Bolton, England, suffers from the most dangerous disease of skin diseases: Bullosa epidermal disease.
Rhys suffers from a rare syndrome that makes the boy's skin always blister, the blisters on his skin will break immediately even if a very light touch, so he rarely gets hugged.
The boy born with Bullosa epidermal disease , a genetic disorder that can be fatal and incurable. Although Rhys was in a painful state, Rhys had never been defeated by the disease, for his parents, the boy was "a small hero".
Rhys Williams, born with epidermal disease
Bullosa, the most dangerous skin disease
Rhys is one of 5,000 cases in the UK with the disease. Rhys's mother, Tanya, 28, had a perfectly normal pregnancy until the birth of the boy in 2005 at Royal Bolton Hospital.
When he was born, the boy had no skin on his legs, the doctors thought the boy had an infection. But after consulting with doctors at Birmingham specialty, they concluded that the boy had Bullosa epidermis.
This means that Rhys must use ointment daily and is susceptible to infection if the burns are not properly cleaned.
The boy's skin is always blistering
Unfortunately for Rhys, his illness is very serious, he suffers from cold sores in his mouth and esophagus. So Rhys is very difficult to eat and often has constipation. Even so, the boy still went to school. At the school there was an elevator and a ramp to help Rhys walk in a wheelchair.
Rhys' mother, Tanya, said: "He is too young to suffer from such a painful disease, this is a shock for us. He is very brave. Never bothered us. We just wanted to cure him so that it was less painful. It was a terrible situation. "
He was always in a "bandage" situation but the boy was very brave
The family had to add a humid room and a bedroom to easily care for and clean Rhys's skin. Every time Rhys will clean, he will get a new one. The boy's family also received funding from the charity Debra.