The girl bleeds herself

Twinkle Dwivedi suffers from a disorder that keeps her constantly losing blood through the pores of her skin. Her rare illness confused Indian doctors.

13-year-old girl said: 'When blood flows from the head, I feel my head heavy. When it flows from the eyes, the eyes are red and swollen '.

The disease began to develop from the age of 12 when Twinkle, when she suddenly suffered bleeding 5 to 20 times a day . 'My school uniform is dyed red all day. Nobody wants to come near or play with me. Back then I often cried whenever that happened, but now I'm quiet, " Twinkle recalls.

Twinkle is forced to leave school because of a strange illness. She now studies at home and rarely contacts other children.

Her family seeks the help of many doctors and gods, but is ineffective.'I do everything to save my daughter. We were not superstitious but in a desperate situation, we went to temples, pagodas, cathedrals, churches, grandmothers, but nothing could cure her illness, 'said Nandani Diwedi, mother of Twinkle, said.

Twinkle may bleed suddenly from all parts of the body.(Photo: Metro)

Health experts in India believe that Twinkle's disease is a form of platelet disorder (a disc-shaped substance that helps blood clot and clot). Currently, people have not found a way to treat this disease. Doctors at the All Medical Institute in Dehli said Twinkle had a type 2 blood platelet disorder that caused her blood to have too little blood-clotting.

They say her blood is very thin and has a light red color of the wine, but they have yet to find a way to make it thicker.

Hope flashes when a British hematologist thinks Twinkle has another form of coagulation disorder and can find a treatment . It is Dr. Drew Provan from Barts Hospital in London. According to the expert, Twinkle's disease is not related to the amount of antifreeze. She suffers from a disease that makes platelets unable to cling to blood vessel walls and blood, leading to difficult blood clots. Some hospitals in the UK can treat the disease.

However, Twinkle's family, living in Uttar Pradesh state in India, did not have enough money to pay for treatment in the UK. Meanwhile her health is getting worse. Twinkle couldn't remember how many times she had had a blood transfusion. The doctors were afraid that she would lose too much blood in a short time and lose her life before she could reach the hospital.

Twinkle (center) with his mother and sister. (Photo: Dailymail.co.uk)