She was in pain when she met the sun

For 6 year old Sarah Chapman (UK), the gloomy days are a favor of nature.

Every time the sun shines, Sarah suffers from a rare, untreatable skin disease called porphyria . Every time she left the house, Sarah was forced to cover her body to avoid harmful sun rays. If not, after just a few seconds, her weak skin will be swollen and the pain will not be tolerated.

Baby Sarah, 6 years old, the British must completely cover their bodies
when going out on a sunny day

Sarah, at West Bolton, Sunderland is one of the few children in the UK who suffers from a rare disease known as Erythropoietic Protoporphyria .

She even named the rainy and gloomy days as "Sarah's weather" because these were the days when she could freely go out without sunscreen or any safety measures. .

Every day, Sarah is forced to use sunscreen, wear a hat, wear gloves and use umbrellas to protect her skin from the sun when outside.

The doctors said that because both her mother and father had bad genes, they inherited it to her daughter.

Mrs. Gillian, her mother, began to notice the strange phenomenon of her daughter when Sarah was three years old. Her family had to write a diary so that doctors could find out why. Finally, doctors diagnosed Sarah with EPP . Even the car window must be dark to allow her to travel safely.

EPP is a disease caused by genetic disorders . Both Chapman and her husband Brian have bad genes and it is inherited for Sarah, although their other children are fortunate not to have this strange disease.