The disease turned the five-year-old girl's body into crystal

Every day using a lot of medicine, little girl Lillie Sutcliffe struggled with the pain in her own body to prevent the cells from freezing. With her parents and doctors treating her, she is a pride, a star of courage.

The five-year-old girl must drink a lot of drugs to prevent her body from turning into crystals.

The strange disease formed the crystal cells inside the small girl Lillie.

Little Lillie Sutcliffe had a defective kidney and it could not completely purify the blood, a remarkable amount of cystine remained and accumulated in her body.

If this amount of cystine is too much, her cells will start to harden.

But even if she had to fight a serious disease to maintain a normal life, Lillie was always the perfect gift that Laura Milner and her father Simon Sutcliffe had in life.

1. Cells turn into stone

Lillie lived in Castleford and was diagnosed with Cysitionosis in August 2006 when she was only 23 months old. The incurable disease forced Lillie to stunt growth, unable to walk at a distance or play any sport.

And with the daily dose that Lillie loaded into her body, she endured the pain against her own body when every cell was turning into crystal form.

Her parents used to worry about Lillie's maturity when she was still just like a newborn at the age of 1, constantly crying and very picky.

After capturing Lillie's eyes and discovering crystals, doctors identified the disease and their announcement shocked Laura and Lille's mother. Laura confided that because she had never heard of the disease, she was very shocked. That means Lillie's body is gradually turning into crystal. The disease attacks every cell, the crystals are filling the inside of her baby, if the disease is not cured, her child will actually turn into stone.

Laura recounts that Lillie cannot do normal things that other five-year-olds can do because she is too small, she has two children 's body. She added that she did not like sweets but always craved salt because her body lost salt through the kidneys. So Lillie's mother often makes her salty dishes to make up for the salt she needs.

2. Cysitionosis - a rare disease

The disease occurs when the cystine elimination mechanism - an amino acid - breaks down from the body. At that time, cystine crystals will attack the cells in the body, causing problems in the kidneys, thyroid, eyes and liver.

Lillie's Laura's mother has to give her child enough medication every day so she can live normally.

Growth retardation is another symptom of the disease, it reduces life expectancy and the patient must have a kidney transplant at some point.

Lillie became ill because of the combination of her latent recessive genes. Pediatric counselor TS Kay Tyerman says the disease can only be partially treated and cannot be completely cured. She said this is an extremely rare disease. It usually does not appear in young children.

Lillie's strange illness causes her kidney to fail, losing a lot of body's mineral salts through her urine while she needs this mineral to grow. The disease can also cause blindness and reduce life expectancy.

3. Lillie is the star of courage

Over the years, Lillie has to take a lot of drugs every day to fight the disease. With Dr. Kay Tyerman, Lillie is truly a star of courage.

Currently, only 2,000 people are known to have cysitinosis around the world.

Lillie's parents separated four years ago and many think that her poor health condition has led to her parents' breakdown. However, the tests helped to better understand the disease and after two treatments, her condition gradually improved. Laura's mother is very proud of her daughter's strength.

The disease is only a part of the life of her daughter and mother and daughter must go through each difficult time but Laura still believes in a brighter future for her children. Science is growing and it is likely that there will be a treatment for her children.