Strange disease: The girl easily

While ordinary people can express all expressive gestures to express their emotions, then Lucy Pratt, a 25-year-old British girl, only needs a shrug to talk to while talking. trouble

At this time she was struggling with an extremely rare syndrome: that could be turned into a "statue" that could not be moved at any time.

This situation makes her face many difficulties when doing the simplest movements: her neck is almost "locked up" so that she cannot move her head, her jaw is almost stiff and she cannot lift arms up from the head.

Lucy pratt

Currently she is still facing the battle of time to find a cure before her body gets stuck in her own skeleton.

Lucy said: 'The situation is getting worse. I really don't want to think about the future. My biggest fear is my legs. I don't want to sit in a wheelchair someday. I really want to have my own independence. "

The situation has been identified by the scientists as the fibrodysplasia ossificans progressiva (FOP) - making the most simple daily activities extremely difficult to implement. Lucy could hardly drive, wear clothes, and even brush her hair.

This is a fairly rare syndrome. Across the UK there are only about 45 people suffering from the disease, and are often discovered from the time of walking. Surprisingly, it was only 15 years of age when Lucy began to show these symptoms.

Lucy remained healthy until one day suddenly collapsed. She later discovered that she had large tumors in the back of her neck and back. She was taken to the hospital by her mother and diagnosed with proliferative necrosis - a rare disease when the muscle fibers and skin become infected and decay.

The treating doctor asked her not to look for information about the disease on the internet, but she did the opposite.'I feel scared when I read what might happen to me, but then I think I will' settle 'it with it.'

Lucy Pratt and mother

And just like that, brave Lucy did not let the disease beat her. Evidence that she has achieved A rank and will definitely have a seat at Oxford University of Physiology.

Not only that, Lucy also takes on a full-time job at a publishing company."There are many things I can't do but I don't like to look at you like that" - she shared.

Lucy also wants to give birth in the future, but doctors recommend that: there is a 50% chance that the child will suffer from the disease. And she could only hope that by the time she gave birth, the scientific community had found a cure.

Her 54-year-old mother, Sheryll Hadley, could not hide her pride in her daughter: 'She always looks at what she can do and what can be achieved. A hard-to-imagine consistency and she is always like that. '

Reference: Daily Mail