The boy may die by a speck of dust
What Alex Hannard wants most is being able to play in the yard with his friends but it is impossible because a grass can kill the boy.
Alex Hannard, the boy in Hill Head, Hampshire, England, suffers from a chronic immunodeficiency disorder (GCD) , which makes white blood cells unable to fight bacteria and infections.
This 9-year-old boy is one of 300 cases of genetic disorders in the UK. Alex rarely leaves the house because a grass or a speck of dust can kill him.
Alex Hannard, age 9, is not allowed to play outside with chronic granulomatous disease (GCD).
Alex's mother, Louise, 40, had to give up her education to take care of the boy. She said: "It's hard to let Alex go out and do things that children of that age want."
Alex could not go near the lake because there were many bacteria and the boy could be infected."The most dangerous place is the playground because there are so many bacteria and of course, the boy is not allowed to play there," Ms. Louise added.
Alex's white blood cells cannot fight infection, so if he gets infected, he will die.
"It is very difficult to keep him in the house because he wants to play like normal children. We tried to play with him as much as possible."
With Louise's mother and David's father, Alex could fight the disease
Doctors at John Radcliffe Hospital, Oxford, Oxon discovered Alex had a chronic granuloma since 2007, when he was 5 years old. Initially, the doctor was unable to find Alex's illness when he was hospitalized. Alex's parents were prepared for the worst.
"I worked a lot, Alex used to stay with the babysitter until the first time he was sick. Only four days later, Alex had special treatment. We were told that he might It was a terrible and harsh time for us .
"Fortunately, a doctor remembers a case of chronic granuloma and treated Alex in this direction. Miraculously, three days later, the boy got up and walked around."
Alex has a desire to become a genetic scientist who can help other sick people like me.
Currently, just by transplanting the original white blood cells, you can have a normal life.
He wishes to become a genetic scientist to help others
He said: "I want to join clubs and go camping but if it's wet, I can't go anywhere because these days there are often many bacteria. I love watching movies and playing video games. I have good friends who always take care of me and keep me safe, but I want to be able to do what others do. "
Anthony Nolan, who helped Alex find a donor of the white blood cell, said: "Alex suffered a lot of limitations in life, a simple infection can threaten his life. The only hope is "He has a stem cell transplant. We need more blood donors, especially boys, to improve their chances of success."
Rosemarie Rymer, who belongs to the chronic granuloma, said: "It's important for families affected by chronic granulomas to get the most normal life possible. It's really hard. I will help and support them as much as I can ".
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