The curse of the goddess originating from the sleeping sickness is to stop breathing
The person who suffers from the "Ondine Curse" when sleeping does not breathe on its own, resulting in the heart stopping beating and falling into a state of death.
The myth says that the handsome, handsome Palemon who loves the goddess of the sea Ondine swore that all his breaths are witnesses of love for Ondine. Palemon is ultimately a delinquent. Realizing the truth, the goddess cursed Palemon that he would stop breathing every time he slept. In medicine there was also a strange disease that caused patients to always face death whenever they went to sleep and the name of the goddess Ondine was given to this syndrome.
According to The Time, the disease is known as the Central Ventilation Syndrome or "Ondine Curse". The disease is a type of central nervous system disorder that affects the ability to breathe freely during sleep. The patient may not automatically breathe, leading to cardiac arrest and death.
Liam had to use a breathing machine and a life-tracking system every time he went to sleep.(Photo: MR).
Strange diseases of sleep apnea are noticed by many scientific researchers. However, doctors have yet to find a way to effectively cure the disease. They have just provided support measures and emergency regimens when patients fall into a state of apnea such as using a breathing tube every time they sleep, surgery to open the trachea in case of stopping breathing for too long .
According to experts, Ondine syndrome may be congenital, some cases often associated with a brain disease or after experiencing a major psychological shock. In each patient, sleep apnea occurs at different frequencies. For some people, this phenomenon only happens occasionally; There are also people who suffer often, even close their eyes and sleep and stop breathing.
If you know how to take good care and follow up, many patients can still live normally. Liam Derbyshire, 18 (England), naturally had the "Ondine curse". Doctors claim Liam lived only 6 weeks after birth. With his resilience, Liam has overcome all challenges and later this year will celebrate his 18th birthday. It can be said that Liam's life in the past 18 years is a tiring day for both him and his parents. but no one will accept the fate and always look forward.
According to MSN, Liam's parents Peter and Kim gave up everything to care for their son. They monitor children for 24 hours with dedicated GPS devices. Mother Liam shared, Ondine's syndrome is very scary, he will leave anytime. Husband and wife help their son live on a breathing machine and without him he will not survive."Liam's condition is extremely rare and if we don't listen to the doctor, he will soon leave," Kim said.
Liam lived very hard. He had to breathe during sleep time. Dad Liam takes care of the sleeping son."If you ask me if I have a good night's sleep, I will say no. Ever since Liam was born I want to spend all my sleep on him. I am always worried and afraid that maybe it is Last time I wished him good sleep , " Peter said.
Liam's family has been supporting boys for the past 18 years.(Photo: MR).
Not only sleep but also Liam's eating condition is not a simple matter. He carries a cancerous tumor in his body and has a problem with his intestines. Kim said: "Food is a big problem for Liam, I have to plan every day and find ways to get him to consume that food."
Dr. Gary Connett treated Liam, saying that only 1,500 people around the world suffer from this disease."I have never seen a case like Liam that can survive until age 18. This is a great thing and he is unique in the world."
Inability to study like children of the same age but Liam likes to draw and assemble models."We went from 0 to 18, I was very proud of my son because he never gave up. I couldn't understand how painful Liam was and this year was a year. A memorable milestone in his life , " said the father.
According to Rarediseases, Ondine syndrome is a lifelong and life-threatening disorder. Patients must go to the hospital every 6 months to assess their ability to breathe when awake and at all stages of sleep. Other tests that should be performed annually include echocardiography, evaluation of autonomic nervous system disorders, and formal cognitive neurological evaluation.
Patients must use ventilators to support breathing. Depending on the severity of the disease, some patients only need to support breathing at night, others may need it throughout the day.
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