The girl is
Even a loving kiss from a parent can take away her life.
>>>The "bloodless" girl survived miraculously
The couple Graeme Warnell, 42, and Aga, 37 (UK) have only four months left to find bone marrow donors and save their 10-week-old daughter Nina.
Nina has a "young bubble" syndrome and must be in the hospital's sterilization chamber.
According to DailyMail, babies with Nina have an extremely rare syndrome of 'young bubbles' and are so fragile that even a common cold can kill them. This syndrome describes babies born with absolutely no immune system, or a weak immune system. The incidence is 1 / 300,000 children and most children who are not treated early will die within the first year of life.
Currently, baby Nina is lying in the sterilized glass chamber of the hospital. Her parents are only allowed to visit their children after wearing masks, hats, and gloves and stepping through a vacuum chamber to ensure they are absolutely "clean" when interacting with Nina.
The Warnell family is desperately looking for people who donate their marrow after being told by doctors, the remaining time for treatment lasts only 3-4 months. Mr. Graema remembers when Nina was born, she looked like every other healthy, normal child. But soon, they found something very wrong with Nina.'After two weeks, she stopped eating and gained weight. I tried to reassure my wife, but her instincts told her that she was not okay and we took her to the hospital. '
Here, doctors said Nina had no immune system and the couple's worst nightmare appeared.
'I want to touch my baby's skin and kiss her, but I can't , ' Aga sobbed. Currently Nina is being treated at the Children's Hospital of Krakow, Poland, where Graema is working. He plans to relocate to treatment in London, however, even a journey by medical professionals has too much risk of infection for Nina.
The Warnell family checked the marrow but no one was suitable for Nina, so all they could do was pray for miracles to happen. The bad thing is that baby Nina has a rare gene model.
The combined immunodeficiency syndrome occurs when the body lacks T cells, the type of cells that guide the immune system against external intruders such as viruses.
As a result, the body will surrender to both the mildest disease and the patient will die. In the case of a hospital finding a marrow and performing a marrow transplant for Nina, the chances of survival will be about 60-90%.
Reference: Daily Mail
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