Strange disease: Syndrome

The boy, George Cullen, 11, and his brother, Simon Cullen, 13, have sharp teeth like vampire characters in the movie Twilight.

The boy, George Cullen, 11, and his brother, Simon Cullen, 13, have sharp teeth like vampire characters in the movie Twilight.

Picture 1 of Strange disease: Syndrome

Two brothers Simon and George Cullen. (Photo: Barcroft Media)

The reason is that it is very rare for two boys with the mutation syndrome Hypohidrotic Ectodermal Dysplasia (HED). According to the Daily Mail , only 7,000 people worldwide have this syndrome.

HED syndrome makes these two boys unable to sweat and this causes them to limit their exposure to the sun to the maximum. In addition, this syndrome caused George and Simon's teeth to grow incompletely and have sharp shapes like vampire characters of horror movies.

George and Simon hardly participate in outdoor activities. Instead, the two boys often find fun in video games and watch TV. In case of going outdoors, two boys must use sunscreen cream, wear a hat and sunglasses to avoid burning and increase their body temperature.

' People often feel frightened, but our friends feel like this kind of tooth. My friends stop even calling me Edward as a vampire character in the Twilight movie , 'Simon said.

Mandy Cullen, the mother of two boys, said: ' People feel scared when they see our two sons. A woman once asked me if my children had white blood disease. However, after the movie Twilight was released, people became more friendly and less frightened of our two sons . '

The Mandy discovered their first son Simon had strange symptoms shortly after he was born a few hours, but they did not know that his son had HED syndrome until he was 6 months old.

Picture 2 of Strange disease: Syndrome

Two brothers with parents. (Photo: Barcroft Media)

' I was pregnant and became very normal. But when Simon was born a few hours, I found his body temperature suddenly dropped. A nurse left Simon under the electric heating bulb to keep him warm. However, after a few minutes, the blisters began to appear in the arm and near the eyes of the boy , 'Ms. Mandy said.

When Simon was 4 months old, the boy was almost dead. The reason was that when he had a fever, Simon's body could not sweat. Soon after, Simon was taken to West Sussex Hospital for emergency treatment. Doctors suspect the boy has HED syndrome but cannot confirm it until he finds out that he does not have teeth when he is 6 months old.

Although she was warned that the next child might have HED syndrome, Mandy decided to give birth to George 18 months later. True to the doctor's concern, George also suffered from a genetic mutation like his brother.

Update 14 December 2018
« PREV
NEXT »
Category

Technology

Life

Discover science

Medicine - Health

Event

Entertainment