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A young English woman asked her boyfriend to hold a wedding ceremony with her so she could fulfill the dream of standing in front of the altar to say the word before the rare disease made her immobile.

According to Daily Mail , Rachel Winnard, 26, of Rochdale, Greater Manchester, England suffers from a rare debilitating syndrome called Fibrodysplasia Ossificans Progressiva (FOP - malignant fibrosis of dysplasia). The disease means the prospect of her muscles, tendons and ligaments slowly transforming into bone.

Rachel Winnard. Photo Dailymail

Rachel was first diagnosed with FOP when she was 12 years old.Any minor injury can cause an explosion because Rachel's body regulation mechanism will make bones grow in places that should be only for muscles and other tissues.

The disease is gradually hardening Rachel's entire body and she is currently unable to raise her hands above her head and wear high heels at all times because she cannot stretch her legs.

It is estimated that there are no more than 500 people suffering from FOP in the world. Many sick people often face painful decisions: choosing to stand or sit for the rest of their lives as the disease progresses.

However, Rachel insisted on doing the most important thing in her life while she could move well. On February 29, 2008, she asked her boyfriend - Paul, 30, to marry him. Until recently, the couple recently held a formal wedding ceremony near their own home in Rochdale when Rachel could even go to the front of the altar to say the word of engagement.

Rachel and her husband take souvenir photos with their relatives on their wedding day.
Photo: Dailymail

Currently, Rachel and her husband are intending to resist doctors' advice by trying to give birth, although pregnancy may increase the risk for people with FOP. Rachel's doctors recommended that she should not give birth because it could increase her illness and the possibility that her baby was born also had FOP like her 50/50.

Rachel had suffered a miscarriage earlier this year, but she and her husband still hoped to give birth to a child so that family life could be more risky.