Having a rare illness, the 25-year-old boy lives in the shape of a 12 year old boy

Tomasz's health problems began to appear when he was only 7 years old. He vomited after each meal and suffered pain in his abdomen, arms and legs.

Tomasz Nadolski, a 25-year-old youth from Wroclaw, Poland, suffers from a rare illness that not only makes his life a living hell, but also makes him stuck in an immature body of a 12 year old boy.

Tomasz's health problems began to appear when he was only 7 years old. He vomited after each meal and suffered pain in his abdomen, arms and legs. Because he could not eat anything, he had lost a lot of weight, and his friends at school started to tease him that he looked like a skeleton.

For many years, doctors did not diagnose his illness, and some even claimed that he had a mental problem rather than physical.

It took 16 years for Tomasz's disease to be diagnosed, but unfortunately that did not make his life any easier.

Tomasz Nadolski was diagnosed with Fabry disease , a rare and dangerous genetic disease caused by a deficiency of alpha-galactosidase , an enzyme that helps treat biological fat molecules called sphingolipids.

Picture 1 of Having a rare illness, the 25-year-old boy lives in the shape of a 12 year old boy

Tomasz Nadolski, 25-year-old young man has a strange disease.(Source: odditycentral).

These molecules accumulate in blood vessel walls and other internal organs, resulting in a series of severe symptoms, including cramps and organ failure.

In Tomasz's case, the disease stopped his physical development, making him look like a 12-year-old boy.

"I'm 25 years old, and I want to look like a man of my age. I hate the child I see every day in the mirror, because that's not me," Tomasz said.

He also said that sometimes others do not believe in his true age even when he showed them the ID card. Once, a policeman also expressed doubts that he was a fake ID.

Despite his desire to look true to his true age, Tomasz's unusual youthful appearance was not his biggest problem.The disease made him unable to eat normally , so he always had to attach himself to an intravenous tube for up to 20 hours a day to provide enough nutrition for the body.

He also had to use painkillers regularly to cope with the terrible pain in most of his body. These pains made him unable to sleep well at night and live a normal life during the day, because just a simple act of walking made him extremely painful.

Because Fabry's disease is so rare, Tomasz often travels around Poland to meet experts to treat his symptoms. So far, his illness has only had minor improvements, but he has not given up hope.

Tomasz currently uses a special prescription to control his condition. His drug treatment costs about $ 215,000 a year - an amount that both he and his family can't afford, but fortunately he gets free medicine from the manufacturer by participating in the a testing.

However, he did not know how long he would still be given free medicine. All he knew was that if he was not treated properly, he would have to surrender to a slow and painful death.

Tomasz's younger brother was also diagnosed with Fabry disease at age 12, but his brother's symptoms were not as serious. There were days when Tomasz was not strong enough to lift himself off the bed, and he had to use large doses of morphine just to ease the pain.

Besides gradually depleting the body, the disease also affected Tomasz's spirit. When asked if he thinks about getting married in the future, Tomasz replies:

"No. I feel that my spirit has been severely destroyed, and that after all these experiences, I need intensive psychological treatment if I want to be able to establish a healthy relationship. ".

To support Tomasz Nadolski against this serious disease, you can support him through the Avalon Fundation fund.

Update 15 December 2018
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