The 23-year-old girl simultaneously raised 2 bones on her body
The 23-year-old American girl is facing a strange disease when her body is gradually
The 23-year-old American girl is facing a strange disease when her body gradually "petrifies".
Jasmin Floyd , 23, is a smart and adventurous girl. The illness began to come to her with a pea in the size of her big toe at birth, and the condition progressed to the point where she made her stiff neck when she started kindergarten.
Her mother, RoJeanne Doege, initially thought she was sleeping wrongly, but over time, her neck gradually became immobile.
Floyd is as normal as any other girl.
Later, Mother Jasmin Floyd took her to many places, but the doctors' diagnosis was wrong to say that she had scoliosis, Lyme disease or even cancer.
In January 1999, a doctor diagnosed that she had a rare genetic condition that caused muscles, ligaments, and soft tissues to connect to the bone, forming the second skeleton on the body. Floyd is one of 300 people in the United States who live with FOP syndrome .
FOP syndrome causes her body to harden.
"This condition is often described as the" petrified "syndrome , which is related to excess bones and it is like a person turning into stone," the doctor explained.
Usually when we break a bone, our body produces enzymes to heal it - the gene responsible for this only activates when the bone needs to be repaired.
However, for Floyd, that gene is always active, the outbreak can be triggered by injury (like a bump or fall).
"It's scary. There's something uncontrollable is taking over my body , " Floyd told CNN.
Since the initial diagnosis, unceasing growth of bones made her unable to bend or raise her hands to borrow. From last summer until now, the disease began to affect the right half of her face, making her unable to open her mouth more than 1cm wide.
Floyd's body is slowly being invaded by bones.
FOP syndrome becomes very serious when the second skeleton penetrates the area around the main organs, affecting their function - if the bone grows around the lungs, the lungs will not be able to swell and swell, makes the patient unable to breathe. This has begun to happen to Floyd.
Despite severe pain, she often followed more than 10 instructions to prevent disease.
The average life expectancy of FOP patients is 45 years, but Floyd may have to use a wheelchair or stay indoors since he was 30 years old. She knew she had to do as much as possible before it was too late.
Young girl enlisted to enjoy life when she could.
Floyd shares on CNN that she goes whenever possible, attends concerts and does things that her body can do, like washing dishes. For things that can't be done naturally, she has found creative solutions.
"I have a long comb that Dad makes and I can brush my hair alone," Floyd said happily.
Currently, Floyd blogs to share his situation, talking to raise awareness about FOP.
She is very funny, accepting and optimistic. With the help of things like wheelchairs, she can travel throughout the city to satisfy her hobbies and enjoy the best.
FOP syndrome can take away her life later, but it cannot lose the smile, optimism and spirit of the young girl.
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