Strange diseases that make medicine 'bundle of hands'
Despite the achievements and breakthroughs in the field of technology research and development, there are still some cases of people with extremely strange and rare diseases that make medicine to "give up".
"Fishman" boy
8-year-old Pan Xianhang, a resident of Wenling Province, east of China, nicknamed the "fishman" due to thick and itchy scales from his head to his feet. Diagnosed with congenital "Ichtyosis" syndrome - a rare genetic disorder, Pan must live his whole life with extreme pain, often accompanied by overheating and extreme itching.
Serious abnormalities in the skin have affected Pan's eyelid, nose, mouth and ears shape, as well as limiting the movement of her arms and legs. Pan's mother said the boy only dreamed of going to school without irritating it.
Experts estimate that each year more than 16,000 babies are born with some form of "fish scale" with symptoms of varying severity. Although there is not yet an effective treatment for "fish scales" but cold water can alleviate symptoms that are too hot, and a thick layer of cream can help prevent cracking and bleeding. Doctors are also studying other treatments for the Chinese "fishman" boy.
The woman looks at the world upside down
Bojana Danilovic has a unique worldview. Due to a rare disease, she looked at everything upside down. The 28-year-old Serbian woman uses a computer monitor upside down at work and relaxation at home in front of an upside-down television screen that sits above a normal television set for the rest of the family.
Experts from Harvard University and Massachusetts Institute of Technology (USA) have been invited to consult, after local doctors are confused by the extremely strange disease. According to them, Danilovic suffers from a neurological disease called "space-oriented disorder syndrome" . There is currently no science to solve this rare special phenomenon of her.
The woman has 2 hymen
Hazel Jones always wonders why she has severe cramps and often has heavy periods during puberty. However, until 18 years old, she went to see a doctor and was diagnosed with up to . 2 vagina.
The 27-year-old blonde, from High Wycombe, Buckinghamshire (England) suffers from a rare disease, with a rate of 1/1 million. Having a "double uterus" syndrome means Jones has two separate uterus and two cervixes.
Jones only went to see the doctor after his longtime boyfriend said, she had a "strange point" in the genital area. An obstetrician, gynecologist explains: "When developing in the fetus, the female fetus begins with two segments of the uterine tube. However, the walls will be broken and form a uterus. Approximately In 3,000 cases, there is one case, the septum still exists inside the uterus, but the case of two separate uterus is much more rare. "
Jones says, she is comfortable with her "illness" despite having two hymen and losing virginity twice. Doctors advised Jones to be careful when pregnant, because she could become pregnant in a uterus but the other uterus "is disruptive" , increasing the risk of retrograde birth and hemorrhage.
Jones refused to undergo surgery to improve the situation because the surgery would be similar to those in transgender people, having to remove a part in a position where the tissue is difficult. Experts will also have to repeat many surgeries, which are very uncomfortable and can cause scar tissue.
The dwarf mutates into a giant
Adam Rainer was born in Graz, Austria in 1899. When going to a health examination to join the army in World War I at the age of 18, the new young man was 1.38m tall and missed. By the age of 19, Rainer was a little taller, reaching 1.43m.
Although quite low, he has an unusually large foot size compared to height, with European shoe size of 43. According to Rainier's disclosure, by the age of 21, he was still classified as a dwarf, but his shoe size jumped to about 53. At this time, although his legs continued to grow at a "massive" speed, Rainier's height was still around. "Stunt" level.
However, the strange thing happened soon after. For some mysterious reason, Rainer started to grow up "like a blow". From his 21st birthday to the age of 32, he has developed his height from 1.47m to 2.18m.
After a medical examination, doctors discovered a tumor on his pituitary - the "culprit" not only caused rapid growth but also partially blinded Rainer. Tumors have led to chronic disease syndrome in adults because the pituitary gland produces too much growth hormone during adulthood. In 1930, doctors tried to treat Rainer by removing the tumor, but he continued to grow taller, albeit at a much slower pace.
In the last 19 years of his life, Rainer's spine continued to grow long and he was 15.2cm taller. In 1950, Rainer died at the age of 51 with a height of 2.34m, becoming the only person in the world who was ever officially ranked as a dwarf and a giant when he was alive.
Woman grows nails to replace hair
It has been nearly 3 years now but doctors are still helpless, unable to diagnose the strange disease of an American girl. The nightmare occurred with Shanyna Isom in September 2009, when she had an allergic reaction to steroid medications prescribed to treat asthma. Within a few months, she was attacked by a weakened dermatological syndrome.
In August 2011, Isom was admitted to Johns Hopkins Hospital in Baltimore, USA. The doctors determined that her body was producing 12 times more skin cells per hair follicle than usual. This causes her to "suffocate" her skin. Instead of hair, Isom's follicles start producing nails. Strange illness also caused her to be exhausted, forced to rely on others to get out of bed or sofa every day.
Doctors can now control Isom's symptoms. However, the mysterious health problem made her fall into an economic crisis. Isom has called for the establishment of SAI funds to fund her treatment as well as to help people with other strange diseases.
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