A rare syndrome, the girl heard blood flowing in her veins

Gemma Cairns, a 32-year-old girl from Scotland cannot remember the last time she had absolute tranquility. Even when there was no outside noise, she could still hear the sounds taking place inside her body like the sound of blood flowing in her veins or the sound of her eyes moving.

Gemma Cairns, a 32-year-old girl from Scotland cannot remember the last time she had absolute tranquility. Even when there was no outside noise, she could still hear the sounds taking place inside her body like the sound of blood flowing in her veins or the sound of her eyes moving.

Cairns couldn't remember ever hearing noises coming from her body but she only realized it was unusual after talking to her mother as a teenager.

Cairns has been trying to find an explanation ever since but until three years ago, doctors were still unable to accurately diagnose her condition and could only prescribe certain types of ear and nose related.

Picture 1 of A rare syndrome, the girl heard blood flowing in her veins

The girl kept hearing strange noises.

With no medicine or methods working, the girl had to get used to always hearing what was going on in her body. It was not until 2016, when Cairns moved to Glasgow, that she was diagnosed with a semi-cystic tube by an expert there.

That means Cairns has a small missing temporal bone in both ear canal. This deficiency affects both hearing and balance while moving.

Doctors advised Cairns to have surgery as soon as possible to fix the problem, but after having her right ear surgery last September, she had to wait until October this year to be able to continue treatment.

'The doctor said that surgery is needed but it can only be done once. You can't have both ears operated at the same time because it will cause you to lose your balance for a while.

I thought the surgery took about 3 hours and after that, I had to stay a few days. Now I am stronger enough to walk, but the recovery itself is quite exhausting, 'Cairns told the Daily Record.

Having strange syndrome from a young age, the 32-year-old said that so far, doctors always seemed to feel she was a little crazy to say that blood could be heard flowing in arteries, eyes. movement or your own heartbeat. Especially when Cairns can never find the right words to describe the sound.

'When you say to someone: "I can hear my eyeballs moving," people will ask me how that sound is and I tried to think of things that could be used to describe but could not find any similar sound.

It was not a sound of liquid but really rubbing sounds. It seemed like it was the noise when my eyelids touched my eyeball. Feeling not uncomfortable but similar. It was deep in my head. I also have tinnitus because there is always noise coming out, '' says Cairns.

Because of this rare syndrome, the girl always tries to keep her heartbeat steady or not to move her eyes too fast. Although she loved to run, but at that time, Cairns' heart beat faster, making her feel tinnitus and dizzy, so Cairns also limited this type of movement.

Update 14 September 2019
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